This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
A day filled with smiles and water can only be a happy one right? Today I took Sam to a pool playdate at my friend Michelle's house. It was a blast for kids and moms! I decided to leave Anaïs with Jeff because it was so hot outside and going to a pool playdate by myself with the 2 girls can be pretty hectic since Sam wants me in the water with her. Michelle also has a huge blow up slide where the kids always have so much fun!
Sam enjoyed taking a little break for a nice lunch. The food was great...I ate so much!!!
The kids loved jumping in the water. It's so much fun because we are a group of girlfriends and our kids really all get along. It allows us to hang out with our kids and everybody has a great time.
Also, right before we went to the playdate, Anaïs was showing off her kicking skills for us. When she gets really happy and excited she likes to kick her little legs really hard, it's so cute!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
5 comments:
Great pics! Looks like so much fun!! :)
Wow, that is one fantastic playdate!! That huge slide must be so much fun. Anais is adorable giving her little legs a workout!
Looks like you had great day! I love the video with Anais kicking and clapping, so cute indeed!!!!
I see that Sam is her greatest fan!
That looks like you had a lot of fun...you dont get playdates like that over here! I loved the video of Anais
Fun times! I've been thinking of splurging on one of those waterslides... Love Anais' video! She is just full of personality!
Post a Comment