This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Tuesday, June 29, 2010
Boat ride.
Today we went on a boat ride around Toulouse. Sam enjoyed it and Anais slept during most of it...It was fun because we went by a neighborhood I used to live in when I was little. Here are the pictures:
I am so jealous! I was just talking to my mother about possibly going to France next summer. I love all the pictures. It looks like you are having a great time. Your mom looks so happy to be with the kids!
So beautiful!!!! It looks like such a pleasant and peaceful day, perfect for a boat ride! Hope you are having a wonderful time! Can't wait for more France pics!!!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
5 comments:
Beautiful! Looks like you are having a wonderful time!
Wow! Very beautiful! Thanks so much for sharing your France trip with us!
I am so jealous! I was just talking to my mother about possibly going to France next summer. I love all the pictures. It looks like you are having a great time. Your mom looks so happy to be with the kids!
So beautiful!!!! It looks like such a pleasant and peaceful day, perfect for a boat ride! Hope you are having a wonderful time! Can't wait for more France pics!!!
Wow - I just love seeing all of these beautiful pictures you have posted! How fun to go by the neighborhood you lived in when you were younger!
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