This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Thursday, March 11, 2010
Worth every penny!!
I know several of you fellow bloggers have asked me to tell you my thoughts about the book version of my blog. Well, I LOVE it! The quality is very good and the book looks great. Here is the front cover: The back cover:
It looks awesome Alex! So special to have your blog in hard copy. Did you order it through Blogger? I remember you posting something about it, but can't recall where you said you were ordering it from.
Alex, that's really really cool. I'd LOVE to do something like that - it's basically like a scrapbook, but without all of the cutting and pasting. I've been trying out electronic scrapbooks. So, what are the details? What company did you use, and just how pricy are we talking about? - less than $150 or more than that??
Alex ... I am so behind in blog land! This book is SO cool! I will need to do a few for Caden. Maybe I will tell my parents that is what I want for my birthday this year!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
4 comments:
It looks awesome Alex! So special to have your blog in hard copy. Did you order it through Blogger? I remember you posting something about it, but can't recall where you said you were ordering it from.
Beautiful book! It does look like it is worth every penny! I priced one for my blog not too long ago, but haven't ordered it yet.
Alex, that's really really cool. I'd LOVE to do something like that - it's basically like a scrapbook, but without all of the cutting and pasting. I've been trying out electronic scrapbooks. So, what are the details? What company did you use, and just how pricy are we talking about? - less than $150 or more than that??
Alex ... I am so behind in blog land! This book is SO cool! I will need to do a few for Caden. Maybe I will tell my parents that is what I want for my birthday this year!
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