This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Tuesday, March 23, 2010
Bonnie Springs Ranch.
Last Saturday, we went to Bonnie Springs Ranch with our LPA chapter. It's an old western town with a petting zoo, it's a really fun place for the kids. That day, Anaïs wasn't feeling too good though but she still had a good time. She loved playing with Jeff's hat.
Poor thing...you can really tell on this picture that she was tired.
Every time we go there Sam loves feeding the ducks.
Then we went on a little train ride through the desert.
Those are such adorable pictures. Poor Anais. She does look so sleepy, but seems to have perked up later in the day. You guys do such amazing things with your chapter and it seems as if Sam is making lifelong friends as well!
Poor little Anais! She still looks adorable, even when she isn't feeling well. Sam looks like she is having a good time too. She is such a sweet big sister!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
4 comments:
What a neat little place! Poor Anais looks tired and icky - glad she had fun anyway! Love Sam with her baby on the train!
Those are such adorable pictures. Poor Anais. She does look so sleepy, but seems to have perked up later in the day. You guys do such amazing things with your chapter and it seems as if Sam is making lifelong friends as well!
Adorable pictures! Oh that sleepy picture! Glad you all had fun!!!
Poor little Anais! She still looks adorable, even when she isn't feeling well. Sam looks like she is having a good time too. She is such a sweet big sister!
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