This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Last Saturday, we went to Bonnie Springs Ranch with our LPA chapter. It's an old western town with a petting zoo, it's a really fun place for the kids. That day, Anaïs wasn't feeling too good though but she still had a good time. She loved playing with Jeff's hat.
Poor thing...you can really tell on this picture that she was tired.
Every time we go there Sam loves feeding the ducks.
Then we went on a little train ride through the desert.
Right now, Sam is learning about all the different states in school. Each kid had to do a presentation on a state and Sam was assigned Utah. She was pretty excited and nervous about it but she did great. Her teacher said she read all her presentation without help, great job Sam! Here she is this morning showing off her board: On the way home from school we had all the windows rolled down since the weather was so beautiful. The girls had fun in the car and enjoyed the wind blowing on their faces.
This morning a friend of mine organized a St Patrick themed playdate so I dressed the girls (and myself) in green for the occasion. We took a couple pictures before we left the house.
Then, Anaïs decided she was done taking pictures...lol
Then, like every Saturday afternoon, Sam had french class. It's hard to stay there with Anaïs because she is loud and I always feel like she's a distraction to the kids so her and I waited in the car. She had fun. :)
On Thursday night we met Sam's school friend and her mom to have pizza. The place we usually go to is great for kids because it has a little game area. Here are a few pictures:Anaïs usually only goes on that little airplane, but that night she got to experience other things and she was very happy about that!
I know several of you fellow bloggers have asked me to tell you my thoughts about the book version of my blog. Well, I LOVE it! The quality is very good and the book looks great. Here is the front cover: The back cover:
Today Sam had her first lesson with her instructor. She loved the one on one attention and of course now she wants to only do private lessons...lol She is very serious about the whole thing, she is cute.
After the session she gets 30 minutes on the ice to practice what she just learned.
BUT, someone was not being very patient during the lesson...
I have to say that it is a challenge to go there with Anaïs because she is fussy the whole hour.
A couple days ago, I bought some Easter stuff to send to my nieces who live in France. Sam LOVED the glittery pencils and I bought for one of them. Today, I thought I would surprise her and buy her the same things and a DVD. For those of you who know me well, you know I do not spoil my girls at all...in fact I am probably a little too strict about it. When Sam got ready to go to bed, she saw the little box under her pillow and was like "what? Who put this there?"
She was so excited when she saw what was in the box.
I LOVE how grateful she is when you do little things like that. She is a wonderful kid.
Oh and to finish, here is Miss Anaïs acting like a rock star:
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.