This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Monday, February 7, 2011
bowling fun
This morning Anaïs and I went bowling with our moms group. She always has lots of fun when we go bowling!
Here we are ready to go have some fun! She's a pro, totally knows what to do:
Bowling, cupcakes and a balloon...can't get much better than that! ;)
I don't think her outfit gets any better. She is so stylish! I just love her coat! and boots! The picture of you two is just precious!!! Glad you had a blast!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
4 comments:
Hi Alex and Anais! Just started a blog for Lyla. It is still a work in progress.
U guys look like u had so much fun. U are beautiful Anais!
Love ur new friends, Leslie and Lyla
PS- Send my blog to other
POLP parents. I would love to talk to them. Thx.
I don't think her outfit gets any better. She is so stylish! I just love her coat! and boots! The picture of you two is just precious!!! Glad you had a blast!
Love how stylish Anais is! Looks like you had a great time!
So fun! Caden has been wanting to go bowling. We will have to give it a try. I just love Anais's little jacket. So cute :0)
Post a Comment