This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Saturday, August 14, 2010
Nothing like...
...spending a summer evening enjoying a free outdoor concert! I love that about Park City. During the summer, there are so many outdoor concerts. Tonight we went to the beautiful ski resort The Canyons. They do concerts every Saturday night in the summer. It was pretty cool because you had to take the lift to get up there.
Anaïs is starting to want to walk more and go explore. But even with all the fun she's having walking, there nothing like being with her dad... And sometimes she'll come to her mom too...lol
Sam got a snow cone, I think she was more excited about that than the whole concert thing.
I tried to take a picture of the four of us so many times but I couldn't Anaïs in it...I gave up after about the 5th time. LOL
Just love the new pictures you have posted-especially that one from your patio-breathtaking. Not as breath taking as your two beautiful daughters! I cannot believe Anais is walking all over the place! She is a real little girl now-no more baby! Glad you are settling in!
Beautiful pictures! It looks like a great time! Yay Anais for walk so much now! She looks like such a little girl now! Sam and Anais are both beautiful!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
5 comments:
Great pics! Looks like everyone had a wonderful time!
Looks like a fun adventure! I am glad you are settled into your home now and are together as a family :0)
Just love the new pictures you have posted-especially that one from your patio-breathtaking. Not as breath taking as your two beautiful daughters! I cannot believe Anais is walking all over the place! She is a real little girl now-no more baby! Glad you are settling in!
Beautiful pictures! It looks like a great time! Yay Anais for walk so much now! She looks like such a little girl now! Sam and Anais are both beautiful!
OMG...Anais has grown so much!!! Cutie pie. I'm so glad you guys are happy there but we miss you!!!!!!!!!!!!
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