This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Wednesday, January 20, 2010
Anaïs' new favorite thing to do...
...is to look at Sam when she's taking her bath. They had so much fun doing that tonight, I could hear them laugh so hard from the other room.
That is so adorable!! LOVED IT. What a precious time. And hey, you didn't have water all over the bathroom during bath time (oh wait...that's just us. : )
It is so awesome to see Anais up on teo legs! She is so proud of herself you can tell. I was behind on blogging but LOVE the pictrues from the frozen yogurt afternoon. The girls look so happy! They are just beautiful!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
6 comments:
Too cute! nate loves the water and loves bathtime. If he sees his sister get in, he takes his clothes off to join! It's so great having siblings bond.
That is so adorable!! LOVED IT. What a precious time. And hey, you didn't have water all over the bathroom during bath time (oh wait...that's just us. : )
It is so awesome to see Anais up on teo legs! She is so proud of herself you can tell. I was behind on blogging but LOVE the pictrues from the frozen yogurt afternoon. The girls look so happy! They are just beautiful!
Just passing through, very beautiful family. Thank you for sharing! Keep up the super work!
blessings...
Cute and curious! I love this! Sonya thinks it is hilarious when her sisters get their baths! Too bad she still doesn't like getting one herself! :)
Cute! Sam and Anais always look like they have so much fun together! Simon and Jude love bath time too!
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