This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Sunday, December 6, 2009
Fun moments...
On Friday, we went to Sam's good friend Merrick's birthday party which was at Pump it Up. That place is always a blast! They have huge inflatable slides, bouncy houses etc... Anaïs enjoyed going down the slide with Jeff the first time but when he took her a second time she wasn't too sure anymore. LOL
It was a pirate theme party, the hats were really cute.
Also, I don't think I've posted pictures of Anaïs pulling herself up yet...these were taken today.
And here is a little video of Anaïs playing with one of her toys tonight:
Way to go little lady!! That is awesome!! She will be walking in no time at all...then watch out mama!! haha We love Pump it Up! Well, we've only been to the Jr. version of it for kids 3 and under, but it's still so much fun!
Anais is just a little angel. I am so proud of her standing! Go Anais! She will be running around in Nashville next summer. I love those inflatable places. We are going to Pump it Up for a birthday party this weekend. I have a blast at those places. Love the pictures of the girls in their pirate hats!
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
7 comments:
Way to go little lady!! That is awesome!! She will be walking in no time at all...then watch out mama!! haha We love Pump it Up! Well, we've only been to the Jr. version of it for kids 3 and under, but it's still so much fun!
Wow, way to go with the standing, Anais!! And can I just tell you how much I love the rolls on her little legs...I wish I could squeeze them!!
Love the pirate hats! Looks like a ton of fun!!! Bravo Anais on that beautiful stand!!! Sonya loves her ball popper too! So much fun!
Yeah for Anais!! Well done with the standing and more to come.
Pump it Up is a ton of fun when I take the kids too! Congrats Anais for your accomplishment...great job!
what a big girl! I love it when they start exploring and figure out how their little bodies work. Cute cute pics!
Anais is just a little angel. I am so proud of her standing! Go Anais! She will be running around in Nashville next summer.
I love those inflatable places. We are going to Pump it Up for a birthday party this weekend. I have a blast at those places. Love the pictures of the girls in their pirate hats!
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