This blog is about our life. I also want to raise awareness about achondroplasia and share our experience. Our baby girl Anaïs was born with achondroplasia.
Tuesday, May 5, 2009
I got an invitation...
to a VERY VERY special event. I am so excited and I feel so special.
Sam gave me an invitation to a Tea for two on Friday morning in her classroom. The invitation is the cutest thing I have ever seen. There is a little poem in it.
Thank you Sam! I can't wait until Friday to have tea with you. :)
Pictures of the Tea Party to follow... of course :)
I am originally from France and have been living in the US since 1999. My husband Jeff is american and speaks fluent french so we are a bilingual family. We have 2 beautiful daughters Samantha born on 5/27/04 and Anaïs (pronounced Ana-eese) born on 6/6/08. Anaïs was born with achondroplasia, the most common form of dwarfism.
If this is your first time reading our blog, read about how our journey with achondroplasia all started by reading Anaïs' story.
What is achondroplasia?
Achondroplasia is the most common form of short-limb dwarfism. It occurs in approximately 1 in 26,000 to 1 in 40,000 births. The characteristic features of achondroplasia are apparent at birth. These include typical facial features, disproportionate short stature, and rhizomelic (the proximal ends of the limbs) shortening. Diagnosis of achondroplasia is made by physical exam and skeletal x-rays. Most individuals have normal intelligence. Infants and children often have motor delays but cognitive delays are not present. A special infant developmental chart has been made for children with achondroplasia. Final adult height is in the range of 4 feet.
8 comments:
Oh how fun! I have Mother's Day breakfast on Friday too! That is so cool. I cannot wait to see the pictures. Have fun!
How sweet! Mother's Day activities with the kids are so much fun! Happy Mother's Day!
very sweet! I get to go to Riley's tomorrow, I can't wait!
That is so sweet! And same looks adorable on the tea pot! I hope you guys have fun Friday!
How cute! Cherylle is doing the same thing with Evan on Thursday at his kindergarten... Happy Mother's Day!
So sweet!! Have a great time! Happy Mother's Day!
Mother's Day Tea's are so much fun!!! I can't wait to see the pics. Have a great time!!!
That is soooo cute!!! Have a fun time!
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