Friday, July 11, 2008

I'm in Holland

When the doctors announced us that Anais would most likely have achondroplasia, I was so scared...I was completely lost.
A good friend of mine (thank you Michelle) sent me an inspirational poem about having a "different" child. I don't think she realizes how much it helped me, and still helps me. At that time I felt like my life was over, I thought my child would never be happy and have a good life. Now I am starting to understand that Anais' happiness depends on Jeff and I. She CAN and WILL be happy and have a good life. It is still hard at times but I need to remember that I must be a good parent and that as long as she is loved she will be fine.




I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

6 comments:

Sarah said...

I love that Alex. Thanks for sharing. And thanks Michelle for being a good friend.

Anonymous said...

Welcome Alex! And your girls are just adorable. Do you mind if I link to your blog from mine?

Amanda

Jillsblog said...

Welcome Alex!!! Your girls are beautiful. Holland is a nice place where you will meet all kinds of great people!!!Can I link you to my blog?

Tonya said...

I love Holland!! Much better than the place we lived before!

Alex said...

thank you all for your comments! And YES, please go ahead and add my blog to yours, I will do the same. :)

Emma said...

Bonjour alex,

Au détour d'une connexion msn j'ai vu l'adresse de ton blog, Patrick m'avait dit pour Anais et j'ai imaginé les durs moments que vous avez traversé. J'ai hésité à laisser un commentaire, je ne savais pas si tu apprecierais que je sois passé "vous rendre une petite visite". Je tenais à te dire que j'ai beaucoup pensé à votre famille et te dire aussi qu'étant moi même en hollande par une autre voie avec Michel, je suis sûre que vous serez à la hauteur vous serez de merveilleux parents pour Anais comme vous l'êtes déjà pour Samantha, je suis totalement d'accord avec ce joli poême et je suis d'accord egalement avec ton affirmation lorsque tu dis qu'Anais sera heureuse et aura une belle vie en très grande partie grace à vous, c'est vous qui lui donnerez les moyen d'être heureuse et de surmonter les difficultés.

Je tenais à vous féliciter pour la naissance d'Anais et ce nouveau bonheur pour votre famille. Je vous souhaite à tous une belle et longue vie.

Une pensée affectueuse de France.

Emma